The University of Washington Center on Outcomes Research in Rehabilitation (UWCORR)

Publications

Note: Publications are posted alphabetically by author. When the complete article is available, it is linked. When an article is not available, we link to the PubMed abstract. If you do not have library access to an article, you can request an electronic copy by emailing uwcorr@u.washington.edu.

Outcome Measures

PROMIS Fatigue Short Form for Multiple Sclerosis (PROMIS-FatigueMS):

PROMIS-FatigueMS Last Updated 7/6/11

University of Washington Self-Efficacy Scale (SES):

UW SES Multiple Sclerosis version 1 Last Updated 11/29/12
UW SES Spinal Cord Injury version 1 Last Updated 11/29/12
UW SES Generic version 1 Last Updated 11/29/12

PROMIS Physical Function Scale for Samples that Use Mobility Aids:

PROMIS Physical Function Scale for Samples that Use Mobility Aids Version 2 FOR USE AFTER JUNE 1, 2013
PROMIS Physical Function Scale for Samples that Use Mobility Aids Version 1 IN USE BEFORE JUNE 1, 2013


Medical Care Supplement

Ader, D. N. (2007). Developing the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care Supplement, 45(5), 1-2.

Harniss, M., Amtmann, D., Cook, D., & Johnson, K. (2007). Considerations for Developing Interfaces for Collecting Patient-Reported Outcomes That Allow the Inclusion of Individuals With Disabilities. Medical Care Supplement, 45(5), 48-54.

Hays, R. D., Liu, H., Spritzer, K., Cella, D. (2007). Item Response Theory Analyses of Physical Functioning Items in the Medical Outcomes Study. Medical Care Supplement, 45(5), 32-38.

Hill, C. D., Edwards, M. C., Thissen, D., Langer, M. M., Wirth, R. J., Burwinkle, T. M., Varni, J. W. (2007). Practical Issues in the Application of Item Response Theory: A Demonstration Using Items From the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales. Medical Care Supplement, 45(5), 39-47.

PROMIS Cooperative Group. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap Cooperative Group During its First Two Years. Medical Care Supplement, 45(5), 3-11.

PROMIS Cooperative Group. (2007). Evaluation of Item Candidates: The PROMIS Qualitative Item Review. Medical Care Supplement, 45(5), 12-21.

PROMIS Cooperative Group. (2007). Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks: Plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care Supplement, 45(5), 22-31.

 

Publications by UWCORR Faculty

Amtmann, D., Bamer, A., Brockway, J., Noonan, V., Cook, K., Johnson, K. (2010). "Measuring self-efficacy in multiple sclerosis: A newly developed scale and short forms." International Journal of MS Care. (Published Abstract)

Amtmann, D., Cook, K.F., Jensen, M.P., Chen, W.H., Choi, S., Revicki, D., Cella, D., Rothrock, N., Keefe, F., Callahan, L., Lai, J.S. (2010). Development of a PROMIS item bank to measure pain interference. Pain, 150(1), 173-182.

Bamer, A., Johnson, K., Amtmann, D., Kraft, G. (2010). Beyond fatigue: Assessing variables associated with sleep problems and use of sleep medications in multiple sclerosis. Clinical Epidemiology, 2010(2), 99-106.

Bamer, A.M. Johnson, K.L., Amtmann, D., Kraft G.H. (2008). Prevalence of sleep problems in individuals with multiple sclerosis. Multiple Sclerosis, 14(8), 1127-30.

Bamer, A.M., Cetin, K., Amtmann, D., Bowen, J.D., Johnson, K.L. (2007). Comparing a self report questionnaire with physician assessment for determining multiple sclerosis clinical disease course: A validation study. Multiple Scleroris, 13 (8), 1033-7.

Baylor, C.R., Yorkston, K.M., Bamer, A., Britton, D., Amtmann, D. (2010). Variables associated with communicative participation in people with multiple sclerosis: A regression analysis. American Journal of Speech-Language Pathology, 19(2), 143-153.

Cook, K.F., Choi, S., Johnson, K., Amtmann, D. (in press). Developing brief fatigue short forms calibrated to a common mathematical metric: Is content-balancing important? Patient Related Outcome Measures.

Cook, K.F., Kallen, M., Amtmann, D. (2009). Having a fit: impact of number of items and distribution of data on traditional criteria for assessing IRTís unidimensionality assumption. Qual Life Res, 18, 447-460.

Cook, K.F., Choi, S.W., Crane, P.K., Deyo, R.A., Johnson, K.L., Amtmann, D. (2008). Letting the CAT out of the bag: comparing computer adaptive tests and an 11-item short form of the Roland-Morris Disability Questionnaire. Spine, 33(12),1378-1383. PMCID: PMC2671199.

Cook, K.F., Taylor, W.P., Dodd, B.G., Teal, C.R., McHorney, C.A. (2007). Evidence-based practice for equating health status items: sample size and IRT model. Journal of Applied Measurement, 8(2), 175-89.

Cook, K.F., Roddey, T.S., O'Malley, K. (2005) Dynamic assessment of health outcomes: Time to let the C.A.T. out of the bag? Health Services Research, 40, 1694-1711.

Cook, K.F., Teal, C.R., Bjorner, J.B., Cella, D., Chang, C.H., Crane, P.K., Gibbons, L.E., Hays, R.D., McHorney, C.A., Ocepek-Welikson, K., Raczek, A.E., Teresi, J.A., Reeve, B.B. (2007). IRT health outcomes data analysis project: An overview and summary. Quality of Life Research, 16 Suppl 1 , 121-32.

Cook, K.F., Teal, C.R., Engebretson, J.C., Hart, K.A., Mahoney, J.S., Robinson-Whelen, S., Sherwood, A.M. (2007). Development and validation of Patient Reported Impact of Spasticity Measure (PRISM). Journal of Rehabilitation Research and Development, 44(3), 363-372. (View more information about PRISM)

Crane, P.K., Cetin, K., Cook, K.F., Johnson, K., Deyo, R., Amtmann, D. (2007). Differential item functioning impact in a modified version of the Roland-Morris Disability Questionnaire.Quality of Life Research, 16 (6), 981-90.

Crane, P.K., Gibbons, L.E., Ocepek-Welikson, K., Cook, K., Cella, D., Narasimhalu, K., Hays, R.D., Teresi, J.A. (2007). A comparison of three sets of criteria for determining the presence of differential item functioning using ordinal logistic regression. Quality of Life Research, 16 Suppl 1 , 69-84.

Crane, P.K., Hart, D.L., Gibbons, L.E., Cook, K.F. (2006). A 37-item shoulder functional status item pool had negligible differential item functioning. Journal of Clinical Epidemiology, 59(5), 478-84.

Davis, E., Nicolas, C., Waters, E., Cook, K., Gibbs, L., Gosch, A., Ravens-Sieberer, U. (2007). Parent-proxy and child self-reported health-related quality of life: using qualitative methods to explain the discordance. Quality of Life Research, 16(5), 863-71.

Eadie, T.L., Yorkston, K.M., Klasner, E.R., Dudgeon, B.J., Deitz, J.C., Baylor, C.R., Miller, R.M., Amtmann, D. (2006). Measuring communicative participation: a review of self-report instruments in speech-language pathology. American Journal of Speech-Language Pathology, 15(4), 307-20.

Eddy, L., Engel, J. (2008). The impact of child disability type on the family. Rehabilitation Nursing, 33(3), 98-103.

Eddy, L., & Cruz, M. (2007). The relationship between fatigue and quality of life in children with special needs: A systematic review. Journal for Specialists in Pediatric Nursing, 12(2), 105-114.

Fleming, A., Cook, K.F., Nelson, N.D., Lai, E.C. (2005) Proxy reports in Parkinson's disease: caregiver and patient self-reports of quality of life and physical activity. Mov Disord. 20(11), 1462-8.

Hart, D.L., Cook, K.F., Mioduski, J.E., Teal, C.R., Crane, P.K. (2006). Simulated computerized adaptive test for patients with shoulder impairments was efficient and produced valid measures of function. Journal of Clinincal Epidemiology 59, 290-298.

Jensen, M.P., Hirsh, A.T., Molton, I.R., Bamer, A.M. (2009). Sleep problems in individuals with spinal cord injury: frequency and age effects. Rehabilitation Psychology, 54(3), 323-31.

Jensen, M.P., Kuehn, C.M., Amtmann, D., Cardenas, D.D. (2007). Symptom burden in persons with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 88(5), 638-45.

Johnson, K.L., Bamer, A.M., Yorkston, K.M., Amtmann, D. (2009). Use of cognitive aids and other assistive technology by individuals with multiple sclerosis. Disability & Rehabilitation: Assistive Technology, 4(1), 1-8.

Kraft, G.H., Johnson, K.L., Yorkston, K., Amtmann, D., Bamer, A., Bombardier, C., Ehde, D., Fraser, R., Starks, H. (2008). Setting the agenda for multiple sclerosis rehabilitation research. Multiple Sclerosis, 14(9), 1292-7.

Mahoney, J.S., Engebretson, J.C., Cook, K.F., Hart, K.A., Robinson-Whelen, S., Sherwood, A.M. (2007). Spasticity experience domains in persons with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 88(3), 287-94.

Matter, B., Feinberg, M., Schomer, K., Harniss, M., Brown, P., Johnson, K. (2009). Information needs of individuals with spinal cord injuries. Journal of Spinal Cord Medicine. 32(5), 545-549.

O'Malley, K.J., Cook, K.F., Price, M.D., Wildes, K.R., Hurdle, J.F., Ashton, C.A. (2005). Measuring diagnoses: ICD code accuracy. HSR 40, 1620-1639.

Snow, A.L., Cook, K., Lin, .P, Morgan, R.O., Magaziner, J. (2005). Proxies and other external-raters: methodological considerations. HSR 40, 1676-1693.

Swartz, R.J., de Moor, C., Cook, K.F., Fouladi, R.T., Basen-Engquist, K., Eng, C., Carmack, C.L., Taylor, C. (2007). Mode effects in the Center for Epidemiologic Studies Depression (CES-D) scale: Personal digital assistant vs. paper and pencil administration. Quality of Life Research, 16(5), 803-13.

Teresi, J.A., Ocepek-Welikson, K., Kleinman, M., Cook, K.F., Crane, P.K., Gibbons, L.B., Morales, L., Orlando-Edelen, M., Cella, D. (2007). Evaluating measurement equivalence using the item response theory log-likelihood ratio (IRTLR) method to assess differential item functioning (DIF): Applications (with illustrations) to measures of physical functioning ability and general distress. Quality of Life Research, 16 Suppl 1 , 43-68.

Washington, L.A. , Wilson, S., Engel, J.M., Jensen, M.P. (2007). Development and preliminary evaluation of a pediatric measure of community integration: The Pediatric Community Participation Questionnaire (PCPQ). Rehabilitation Psychology, 52(2), 241-245.

Yorkston, K. M., Johnson, K., Boesflug, E., Skala, J., Amtmann, D. (2010). Communicating about the experience of pain and fatigue in disability. Journal of Quality of Life Research , 19, 243 - 251.

Yorkston, K.M., Kuehn, C.M., Johnson, K.L., Ehde, D.M., Jensen, M.P., Amtmann, D. (2008). Measuring participation in multiple sclerosis: A comparison of the domains of frequency, importance, and self-efficacy. Disability and Rehabilitation, 30(2), 88-97

Yorkston, K.M., Baylor, C.R., Klasner, E.R., Deitz, J., Dudgeon, B.J., Eadie, T., Miller, R.M., Amtmann, D. (2007). Satisfaction with communicative participation as defined by adults with multiple sclerosis: A qualitative study. Journal of Communication Disorders, 40 (6), 433-51.

 

 

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