University of Washington Center for Outcomes Research Rehabilitation

Quality of Life Study for People with Spinal Cord Injury

What?

We need individuals with spinal cord injury (SCI) to help us decide what questions are most important or relevant to ask people with SCI. Our goal is to develop a new scale of items to gather information about the quality of life of individuals with SCI. You must be:

• Over 18 years old
• Speak English

Why?

Although many other quality of life instruments are available, several of them may not be able to capture the unique experiences of living with a spinal cord injury. By developing a new questionnaire based on input from people with SCI, this questionnaire can provide professionals, clinicians, researchers and most importantly consumers and their family and friends important information to better understand the quality of life concerns of a person with SCI.

What's involved?

Completing up to three surveys and/or interviews about quality of life issues that are unique to persons with SCI over the phone or in-person with a member of our research staff. You will be compensated $35 for each interview completed. You will also be compensated $30 for completing one questionnaire, $40 for completing two questionnaires and $50 for completing three questionnaires.

Benefits

There is no direct benefit for participating in this study, but your input can help us develop a questionnaire that is not presently available that can provide a means for people with SCI to identify and express their quality of life concerns.

Interested?

If you would like to know more about this study or are interested in participating, please contact:

Dagmar Amtmann
206-221-2414
uwcorr@u.washington.edu

(Please note that confidentiality of email cannot be guaranteed)