UWCORR Publications
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2018
(2018) A comparison of computerized adaptive testing and fixed-length short forms for the Prosthetic Limb Users Survey of Mobility (PLUS-MTM)., Prosthetics and orthotics international vol. 42(5) p. 476-482
(2018) People with multiple sclerosis report significantly worse symptoms and health related quality of life than the US general population as measured by PROMIS and NeuroQoL outcome measures., Disability and health journal vol. 11(1) p. 99-107
(2018) Measuring Pain Catastrophizing and Pain-Related Self-Efficacy: Expert Panels, Focus Groups, and Cognitive Interviews., The patient vol. 11(1) p. 107-117
(2018) Reduced Postburn Hypertrophic Scarring and Improved Physical Recovery With Yearlong Administration of Oxandrolone and Propranolol., Annals of surgery vol. 268(3) p. 431-441
(2018) Association Between Sleep Problems and Perceived Cognitive Dysfunction Over 12 Months in Individuals with Multiple Sclerosis., Behavioral sleep medicine vol. 16(1) p. 79-91
(2018) Somatic Symptoms of Depression and Anxiety in People with Multiple Sclerosis., International journal of MS care vol. 20(3) p. 145-152
(2018) Grooming a CAT: customizing CAT administration rules to increase response efficiency in specific research and clinical settings., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 27(9) p. 2403-2413
(2018) Association of self-reported cognitive concerns with mobility in people with lower limb loss., Disability and rehabilitation vol. 40(1) p. 96-103
(2018) The MSOAC approach to developing performance outcomes to measure and monitor multiple sclerosis disability., Multiple sclerosis (Houndmills, Basingstoke, England) vol. 24(11) p. 1469-1484
(2018) Laboratory- and community-based health outcomes in people with transtibial amputation using crossover and energy-storing prosthetic feet: A randomized crossover trial., PloS one vol. 13(2) p. e0189652
2017
(2017) Satisfaction With Life Over Time in People With Burn Injury: A National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study., Archives of physical medicine and rehabilitation
(2017) Psychometric Properties of the Satisfaction With Life Scale in People With Traumatic Brain, Spinal Cord, or Burn Injury: A National Institute on Disability, Independent Living, and Rehabilitation Research Model System Study., Assessment p. 1073191117693921
(2017) Psychometric Properties of the Modified 5-D Itch Scale in a Burn Model System Sample of People With Burn Injury., Journal of burn care & research : official publication of the American Burn Association vol. 38(1) p. e402-e408
(2017) National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System: Review of Program and Database., Archives of physical medicine and rehabilitation
(2017) Resilience and Function in Adults With Physical Disabilities: An Observational Study., Archives of physical medicine and rehabilitation vol. 98(6) p. 1158-1164
(2017) Do measures of depressive symptoms function differently in people with spinal cord injury versus primary care patients: the CES-D, PHQ-9, and PROMIS®-D, Quality of Life Research vol. 26(1) p. 139-148
(2017) The National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System: Twenty Years of Contributions to Clinical Service and Research., Journal of burn care & research : official publication of the American Burn Association vol. 38(1) p. e240-e253
(2017) Construct Validity of the Prosthetic Limb Users Survey of Mobility (PLUS-M) in Adults With Lower Limb Amputation., Archives of physical medicine and rehabilitation vol. 98(2) p. 277-285
(2017) Prosthetists' perceptions and use of outcome measures in clinical practice: Long-term effects of focused continuing education., Prosthetics and orthotics international vol. 41(3) p. 266-273
(2017) Life impact of caregiving for severe childhood epilepsy: Results of expert panels and caregiver focus groups., Epilepsy & behavior : E&B vol. 74 p. 135-143
(2017) Translating CESD-20 and PHQ-9 Scores to PROMIS Depression., Assessment vol. 24(3) p. 300-307
(2017) Cross-Sectional Assessment of Factors Related to Pain Intensity and Pain Interference in Lower Limb Prosthesis Users., Archives of physical medicine and rehabilitation vol. 98(1) p. 105-113
2016
(2016) BMS Letter to the Editor #1: Introduction to the Burn Model System Centers Program., Burns : journal of the International Society for Burn Injuries vol. 42(4) p. 944-6
(2016) Letter to the Editor #2: Description of the Burn Model System National Database sample., Burns : journal of the International Society for Burn Injuries vol. 42(3) p. 704-5
(2016) Minimally important differences for Patient Reported Outcomes Measurement Information System pain interference for individuals with back pain., Journal of pain research vol. 9 p. 251-5
(2016) Evidence from diverse clinical populations supported clinical validity of PROMIS pain interference and pain behavior., Journal of clinical epidemiology vol. 73 p. 103-11
(2016) A PROMIS Measure of Neuropathic Pain Quality., Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research vol. 19(5) p. 623-30
(2016) Variables Associated With Communicative Participation After Head and Neck Cancer., JAMA otolaryngology-- head & neck surgery vol. 142(12) p. 1145-1151
(2016) Testing the measurement invariance of the University of Washington Self-Efficacy Scale short form across four diagnostic subgroups., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 25(10) p. 2559-2564
(2016) PROMIS measures of pain, fatigue, negative affect, physical function, and social function demonstrated clinical validity across a range of chronic conditions., Journal of clinical epidemiology vol. 73 p. 89-102
(2016) Comparison of Sleep Problems in Individuals with Spinal Cord Injury and Multiple Sclerosis., Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine vol. 12(5) p. 695-701
(2016) Characterizing mobility from the prosthetic limb user's perspective: Use of focus groups to guide development of the Prosthetic Limb Users Survey of Mobility., Prosthetics and orthotics international vol. 40(5) p. 582-90
(2016) Psychometric evaluation of self-report outcome measures for prosthetic applications., Journal of rehabilitation research and development vol. 53(6) p. 797-812
(2016) The role of pain acceptance on function in individuals with disabilities: a longitudinal study., Pain vol. 157(1) p. 247-54
(2016) A psychometric examination of multimorbidity and mental health in older adults., Aging & mental health vol. 20(3) p. 309-17
(2016) Differential item function analysis of a scale measuring worry about affording healthcare in multiple sclerosis., Rehabilitation psychology vol. 61(4) p. 430-434
(2016) A Tandem Cycling Program: Feasibility and Physical Performance Outcomes in People With Parkinson Disease., Journal of neurologic physical therapy : JNPT vol. 40(4) p. 223-9
(2016) Self-Reported Cognitive Concerns in People With Lower Limb Loss., Archives of physical medicine and rehabilitation vol. 97(6) p. 912-8
(2016) Pain intensity rating training: results from an exploratory study of the ACTTION PROTECCT system., Pain vol. 157(5) p. 1056-64
(2016) Resilience, age, and perceived symptoms in persons with long-term physical disabilities., Journal of health psychology vol. 21(5) p. 640-9
2015
(2015) Health-related profiles of people with lower limb loss., Archives of physical medicine and rehabilitation vol. 96(8) p. 1474-83
(2015) A comparison of multiple patient reported outcome measures in identifying major depressive disorder in people with multiple sclerosis., Journal of psychosomatic research vol. 79(6) p. 550-7
(2015) Pain affects depression through anxiety, fatigue, and sleep in multiple sclerosis., Rehabilitation psychology vol. 60(1) p. 81-90
(2015) Beyond depression: Predictors of self-reported cognitive function in adults living with MS., Rehabilitation psychology vol. 60(3) p. 254-62
(2015) Assessing measurement invariance of three depression scales between neurologic samples and community samples., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 24(8) p. 1829-34
(2015) Efficacy of a Telephone-Delivered Self-Management Intervention for Persons With Multiple Sclerosis: A Randomized Controlled Trial With a One-Year Follow-Up., Archives of physical medicine and rehabilitation vol. 96(11) p. 1945-58.e2
(2015) Comparison of self-report sleep measures for individuals with multiple sclerosis and spinal cord injury., Archives of physical medicine and rehabilitation vol. 96(3) p. 478-83
(2015) Use of and confidence in administering outcome measures among clinical prosthetists: Results from a national survey and mixed-methods training program., Prosthetics and orthotics international vol. 39(4) p. 314-21
(2015) Self-efficacy as a longitudinal predictor of perceived cognitive impairment in individuals with multiple sclerosis., Archives of physical medicine and rehabilitation vol. 96(5) p. 913-9
(2015) The relationship of age, function, and psychological distress in multiple sclerosis., Psychology, health & medicine vol. 20(6) p. 629-34
(2015) Overview of the Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system, The Journal of Spinal Cord Medicine vol. 38(3) p. 257-269
(2015) Item-level informant discrepancies between children and their parents on the PROMIS(®) pediatric scales., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 24(8) p. 1921-37
2014
(2014) Comparing CESD-10, PHQ-9, and PROMIS depression instruments in individuals with multiple sclerosis., Rehabilitation psychology vol. 59(2) p. 220-9
(2014) A differential item functioning (DIF) analysis of the Communicative Participation Item Bank (CPIB): comparing individuals with Parkinson's disease from the United States and New Zealand., Journal of speech, language, and hearing research : JSLHR vol. 57(1) p. 90-5
(2014) The electronic self report assessment and intervention for cancer: promoting patient verbal reporting of symptom and quality of life issues in a randomized controlled trial., BMC cancer vol. 14(1) p. 513
(2014) Electronic self-report assessment for cancer and self-care support: results of a multicenter randomized trial., Journal of clinical oncology : official journal of the American Society of Clinical Oncology vol. 32(3) p. 199-205
(2014) Testing measurement invariance of the patient-reported outcomes measurement information system pain behaviors score between the US general population sample and a sample of individuals with chronic pain., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 23(1) p. 239-44
(2014) Report of the NIH Task Force on research standards for chronic low back pain., Spine vol. 39(14) p. 1128-43
(2014) Report of the National Institutes of Health task force on research standards for chronic low back pain., Journal of manipulative and physiological therapeutics vol. 37(7) p. 449-67
(2014) Communicative participation and quality of life in head and neck cancer., The Annals of otology, rhinology, and laryngology vol. 123(4) p. 257-64
(2014) Why disability and rehabilitation specialists should lead the way in patient-reported outcomes., Archives of physical medicine and rehabilitation vol. 95(8) p. 1419-22
(2014) Health care worry is associated with worse outcomes in multiple sclerosis., Rehabilitation psychology vol. 59(3) p. 354-9
(2014) Negative affect and sleep disturbance may be associated with response to epidural steroid injections for spine-related pain., Archives of physical medicine and rehabilitation vol. 95(2) p. 309-15
(2014) Symptoms and quality of life indicators among children with chronic medical conditions., Disability and health journal vol. 7(1) p. 96-104
(2014) Assessment of upper extremity function in multiple sclerosis: review and opinion., Postgraduate medicine vol. 126(5) p. 102-8
(2014) Prevalence and impact of pain in adults aging with a physical disability: comparison to a US general population sample., The Clinical journal of pain vol. 30(4) p. 307-15
(2014) Use of cognitive interviews in the development of the PLUS-M item bank., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 23(6) p. 1767-75
(2014) Using item response theory to enrich and expand the PROMIS® pediatric self report banks., Health and quality of life outcomes vol. 12(1) p. 160
(2014) Exploratory and confirmatory factor analysis of the PROMIS pain quality item bank., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 23(1) p. 245-55
(2014) Obesity and symptoms and quality of life indicators of individuals with disabilities, Disability and Health Journal vol. 7(1) p. 124-130
(2014) PROMIS® Parent Proxy Report Scales for children ages 5-7 years: an item response theory analysis of differential item functioning across age groups., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 23(1) p. 349-61
(2014) What do healthcare providers advise women with multiple sclerosis regarding pregnancy?, Multiple sclerosis international vol. 2014 p. 819216
(2014) Communicative participation restrictions in multiple sclerosis: associated variables and correlation with social functioning., Journal of communication disorders vol. 52 p. 196-206
2013
(2013) Symptom profiles in individuals aging with post-polio syndrome., Journal of the American Geriatrics Society vol. 61(10) p. 1813-5
(2013) Development of a crosswalk for pain interference measured by the BPI and PROMIS pain interference short form., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 22(10) p. 2769-76
(2013) The Communicative Participation Item Bank (CPIB): item bank calibration and development of a disorder-generic short form., Journal of speech, language, and hearing research : JSLHR vol. 56(4) p. 1190-208
(2013) Validity of an observation method for assessing pain behavior in individuals with multiple sclerosis., Journal of pain and symptom management vol. 46(3) p. 413-21
(2013) Development and validation of a new self-report measure of pain behaviors., Pain vol. 154(12) p. 2867-76
(2013) Multiple sclerosis and fatigue: understanding the patient's needs., Physical medicine and rehabilitation clinics of North America vol. 24(4) p. 653-61
(2013) Self-management for people with multiple sclerosis: report from the first international consensus conference, november 15, 2010., International journal of MS care vol. 15(2) p. 99-106
(2013) Self-Management for People with Multiple Sclerosis, International Journal of MS Care vol. 15(2) p. 99-106
(2013) Upper-extremity and mobility subdomains from the Patient-Reported Outcomes Measurement Information System (PROMIS) adult physical functioning item bank., Archives of physical medicine and rehabilitation vol. 94(11) p. 2291-6
(2013) Measurement invariance of the PROMIS pain interference item bank across community and clinical samples., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 22(3) p. 501-7
(2013) Future directions of multiple sclerosis rehabilitation research., Physical medicine and rehabilitation clinics of North America vol. 24(4) p. 721-30
2012
(2012) University of Washington self-efficacy scale: a new self-efficacy scale for people with disabilities., Archives of physical medicine and rehabilitation vol. 93(10) p. 1757-65
(2012) Comparison of the psychometric properties of two fatigue scales in multiple sclerosis., Rehabilitation psychology vol. 57(2) p. 159-66
(2012) Comparison of 7-day recall and daily diary reports of COPD symptoms and impacts., Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research vol. 15(3) p. 466-74
(2012) A PROMIS fatigue short form for use by individuals who have multiple sclerosis., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 21(6) p. 1021-30
(2012) Six patient-reported outcome measurement information system short form measures have negligible age- or diagnosis-related differential item functioning in individuals with disabilities., Archives of physical medicine and rehabilitation vol. 93(7) p. 1289-91
(2012) Development of six PROMIS pediatrics proxy-report item banks., Health and quality of life outcomes vol. 10(1) p. 22
(2012) Measuring fatigue in persons with multiple sclerosis: creating a crosswalk between the Modified Fatigue Impact Scale and the PROMIS Fatigue Short Form., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 21(7) p. 1123-33
(2012) PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 21(7) p. 1223-40
(2012) Satisfaction with participation in multiple sclerosis and spinal cord injury., Disability and rehabilitation vol. 34(9) p. 747-53
2011
(2011) The PROMIS initiative: involvement of rehabilitation stakeholders in development and examples of applications in rehabilitation research., Archives of physical medicine and rehabilitation vol. 92(10 Suppl) p. S12-9
(2011) Item selection in self-report measures for children and adolescents with disabilities: lessons from cognitive interviews., Journal of pediatric nursing vol. 26(6) p. 559-65
(2011) Perspectives on self-management in multiple sclerosis: a focus group study., International journal of MS care vol. 13(3) p. 146-52
(2011) Perspectives on Self-Management in Multiple Sclerosis, International Journal of MS Care vol. 13(3) p. 146-152
(2011) Falls in multiple sclerosis., PM & R : the journal of injury, function, and rehabilitation vol. 3(7) p. 624-32; quiz 632
(2011) Developing a contemporary patient-reported outcomes measure for spinal cord injury., Archives of physical medicine and rehabilitation vol. 92(10 Suppl) p. S44-51
2010
(2010) Development of a PROMIS item bank to measure pain interference., Pain vol. 150(1) p. 173-82
(2010) Frequency of purchase and associated costs of assistive technology for Washington State Medicaid program enrollees with spina bifida by age., Disability and health journal vol. 3(3) p. 155-61
(2010) Beyond fatigue: Assessing variables associated with sleep problems and use of sleep medications in multiple sclerosis, Clinical Epidemiology vol. 2(1) p. 99-106
(2010) Variables associated with communicative participation in people with multiple sclerosis: a regression analysis., American journal of speech-language pathology vol. 19(2) p. 143-53
(2010) Relationship of word- and sentence-level working memory to reading and writing in second, fourth, and sixth grade., Language, speech, and hearing services in schools vol. 41(2) p. 179-93
(2010) The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008., Journal of clinical epidemiology vol. 63(11) p. 1179-94
(2010) Developing brief fatigue short forms calibrated to a common mathematical metric: is content-balancing important?, vol. 2010(1)
(2010) Is less more? A preliminary investigation of the number of response categories in self-reported pain., Patient related outcome measures vol. 2010(1) p. 9-18
(2010) Communicating about the experience of pain and fatigue in disability., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 19(2) p. 243-51
2009
(2009) Developing the communicative participation item bank: Rasch analysis results from a spasmodic dysphonia sample., Journal of speech, language, and hearing research : JSLHR vol. 52(5) p. 1302-20
(2009) Linking pain items from two studies onto a common scale using item response theory., Journal of pain and symptom management vol. 38(4) p. 615-28
(2009) Hearing aid effectiveness after aural rehabilitation - individual versus group (HEARING) trial: RCT design and baseline characteristics., BMC health services research vol. 9(1) p. 233
(2009) Having a fit: impact of number of items and distribution of data on traditional criteria for assessing IRT's unidimensionality assumption., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 18(4) p. 447-60
(2009) Use of cognitive aids and other assistive technology by individuals with multiple sclerosis, Disability and Rehabilitation: Assistive Technology vol. 4(1) p. 1-8
(2009) Measuring pain in the context of homelessness., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 18(7) p. 863-72
(2009) Development and psychometric analysis of the PROMIS pain behavior item bank., Pain vol. 146(1-2) p. 158-69
2008
(2008) Identifying and predicting classes of response to explicit phonological spelling instruction during independent composing., Journal of learning disabilities vol. 41(3) p. 218-34
(2008) Validation study of prevalence and correlates of depressive symptomatology in multiple sclerosis., General hospital psychiatry vol. 30(4) p. 311-7
(2008) Levels of Speech Usage: A Self-Report Scale for Describing How People Use Speech., Journal of medical speech-language pathology vol. 16(4) p. 191-198
(2008) Letting the CAT out of the bag: comparing computer adaptive tests and an 11-item short form of the Roland-Morris Disability Questionnaire., Spine vol. 33(12) p. 1378-83
(2008) Developing a scale of communicative participation: a cognitive interviewing study., Disability and rehabilitation vol. 30(6) p. 425-33
(2008) Measuring participation in people living with multiple sclerosis: A comparison of self-reported frequency, importance and self-efficacy, Disability and Rehabilitation vol. 30(2) p. 88-97
2007
(2007) Differential item functioning impact in a modified version of the Roland-Morris Disability Questionnaire., Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 16(6) p. 981-90
(2007) Considerations for developing interfaces for collecting patient-reported outcomes that allow the inclusion of individuals with disabilities, Medical Care vol. 45(5 SUPPL. 1)
(2007) Symptom burden in persons with spinal cord injury., Archives of physical medicine and rehabilitation vol. 88(5) p. 638-45
(2007) Satisfaction with communicative participation as defined by adults with multiple sclerosis: a qualitative study., Journal of communication disorders vol. 40(6) p. 433-51
2006
(2006) Survey of SLP caseloads in Washington State schools: implications and strategies for action., Language, speech, and hearing services in schools vol. 37(2) p. 104-17
(2006) Measuring communicative participation: a review of self-report instruments in speech-language pathology., American journal of speech-language pathology vol. 15(4) p. 307-20
2004
(2004) Survey of cannabis use in patients with amyotrophic lateral sclerosis., The American journal of hospice & palliative care vol. 21(2) p. 95-104
(2004) The cost and benefits of employment: a qualitative study of experiences of persons with multiple sclerosis., Archives of physical medicine and rehabilitation vol. 85(2) p. 201-9
2003
(2003) Getting the work done: a qualitative study of individuals with multiple sclerosis., Disability and rehabilitation vol. 25(8) p. 369-79
