Caregiving-non-US

 

Do you care for a child with Dravet Syndrome or other epilepsy condition?
If so, we need your help!

 

 

WHY WE NEED YOU

 

The University of Washington is conducting a study to learn more about the experience of caring for children with epilepsy and other serious medical conditions, including children with Dravet Syndrome. The information you provide will help us develop a new questionnaire that clinicians and researchers can use to measure the difficulties and rewards associated with caring for these children. For instance, parents often say that taking care of a child’s seizures can make them feel like they are always “on call.” Caregiving may also make parents feel closer to the people who are most important to them.

 

WHAT’S INVOLVED?

We need volunteers to take part in either:

(1) a 60 to 90 minute focus group to talk about caring for a child with epilepsy, and/or

(2) a 30-75 minute audiotaped interview to get your thoughts and opinions about questions that measure caregiving experiences.  

You can choose to participate in-person at the University of Washington in Seattle or on the telephone.  You are welcome to participate in either one or both studies. The discussion will be conducted in English, but the study is open to participation by caregivers of children with Dravet Syndrome or other epilepsy condition located anywhere in the world.
 

WHO CAN PARTICIPATE?

In order to participate you must:

  • be at least 18 years of age;
  • be able to read, write, and understand English;
  • care for a child with epilepsy
     

Will I be compensated for my participation?

No, unfortunately we are unable to send payments outside the United States.

If you feel this study may be right for you, please enter your information below and research staff will be in contact with you

 


You may also contact the research coordinator at:
1 (844) 847-7892 (toll-free)  ||  +1 (206) 221-1428  (if calling from outside the USA)  ||   uwcorr@uw.edu


 

 

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